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Congenital heart defects are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware that she is pregnant. Defects range in severity from simple problems, such as "holes" between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves

According to recent study, 3-8 children out of every thousand live births are born with heart disorders and two-thirds of them are liable to die before they cross their first birthday. Compounding to the poverty, the lack of medical insurance cover for young children with congenital disorders often snatches away the opportunity for timely correction of simple defects surgically which later on become difficult to treat commented


Key Result Area of this project is to  to give underprivileged children in India  born with heart diseases appropriate treatment. Uday Foundation aims to assist early diagnosis and availability of monetary assistance for diagnostic purposes and surgical interventions.

 

 

Important Topics on Congenital Heart Defects

Various Congenital Heart Conditions - Children’s Heart Federation

Common Heart Defects in Children - American Heart Association

 

Resource and International Support Groups

Children's Heart Federation

American Heart Association 

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News and Media Reports

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NGO asks child rights body to take action on bore well deaths : IANS

Make Testing on Animal Humane : Rahul Verma : Editorial of Pioneer

Basic human rights violated by AIIMS, says NGO : PTI

NGO launches fight against granting permission to phase I trials

Mother’s Courage : NDTV

Right to abort child versus the law's right :CNN IBN

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Rights body asks AIIMS to explain infant deaths- Hindustan Times

In blast times, eunuch goes to donate blood, is turned away : MetroNow

Stunted by an operation, girl longs to look her age : Mumbai Mirror

NHRC issues notice to AIIMS , Times of India, 

NHRC asks AIIMS to respond on drugs trial on babies : Business Standard

How safe are our clinical trials? : Business Standard, India 

NGO wants baby deaths at AIIMS to be probed : Business Standard, India 

NGO files complaint on babies' death case in AIIMS trial : Hindu, India 

Children Die in an Outsourcing Boom : Scoop.co.nz, New Zealand 

AIIMS probe puts Indian trials boom in uncertain light : Pharma Times
(subscription), UK 

NGO urges human rights body to probe infant deaths at AIIMS : Trading Markets (press release), CA

49 Babies die during drug trials in Indian hospital : The Times, South Africa 

Investigation after 49 infants die in Indian medical trials : Radio Australia, Australia

Clinical trials row shakes Indian medicine : Nature.com (subscription), UK 

Top Indian hospital to probe baby deaths in clinical trials : AFP -

India investigates drug trial baby deaths : Telegraph.co.uk, United Kingdom - Aug 20, 2008

Drug trials in India under investigation after 49 babies die at ... : Times Online, UK - Aug 19, 2008

AIIMS orders probe into deaths : Hindustan Times

Infant deaths: Ramadoss orders probe : Times of India, India - Aug 18, 2008

49 babies die during clinical trials : Times of India, 

Baby Deaths After Indian Drug Trials Sparks Ethical Debate : The Epoch Times, NY 

AIIMS rare blood bank has only 100 listed donors : CNN IBN, 

Birth of a debate: The abortion dilemma : CNN IBN

RMLH sans specialist paediatric surgeon : The Tribune

Drive against staff shortage : The Tribune

AIIMS blood bank short of rare groups : The Tribune

 Indian boy trapped in body of an eight-year-old child after brain tumour : The Daily Telegraph, London

Signature Campaign for re establishment of Pediatric Department at RML Hospital : CNN IBN

AIIMS lists only 100 donors of rare blood group – Indian Express

Fighting social stigma and penury : Midday

Dry Blood Bank of AIIMS – Hindustan

Only One meeting in 1000 days : Hindustan

Human Organ Transplant Law gathers dust : MNews

Rare blood donors: India has first website catering to the problem : NDTV 24X7

Aterial Link : World Blood Donor’s Day Special : Times of India

Comfortable Count : No Shortage of Blood in Mumbai ( Times Of India)

Sanjay Dutt Ready to Help ( Times of India )

Lage Raho Munna Bhai : Times of India

Don’t fret if you have rare blood group, help is online ( DNA ,Mumbai )

Banking on bikers’ help, city couple sets sight on getting blood to patients - Indian Express

Only 24% Voluntary Blood Donation in Delhi : Hindustan

Blood@80 kmph - Mumbai Mirror

 Delhi couple starts website on rare blood groups- Hindustan Times

3 Months Pakistani Boy Got New Life at Escorts , We arranged AB Negative blood

Special Report by NDTV featuring story of our little Arjunuday


Petition on organ donation law sparks debate


Court to NGO: spread awareness on kidney transplants


Petition seeks exemption of duty on dialysis kits : IANS  (7th March)


PIL in Delhi HC to make easy organ transplant act : News Track  ( must read )


Activist moves high court on kidney transplant law - IANS


PIL in HC seeks policy to curb illegal kidney trade - ECONOMIC TIMES


PIL in HC seeks review of Organ Transplant Act : INDIAN EXPRESS  ( must read )


PIL in HC seeks policy to curb illegal kidney trade : Times of India


Case filed in High Court to seek review of Human Organ Transplant Act - HINDU ( must read )


Activist moves high court on kidney transplant law : India eNews 


Court serves notice to Union Ministries on inter sex issue - The Hindu


Treat inter-sex people as separate class: HC to Centre - Indian Express

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